Living with ALS: 'Everybody else is your hands and your feet'

Living with ALS: 'Everybody else is your hands and your feet' »Play Video

Watch #LiveOnKMTR at 5:30 p.m. and 11 p.m. for more on this story

BEND, Ore. -- Allena Anker was diagnosed with Lou Gehrig's disease in 2009.

Ever since, the rare neuro disease aptly called "the master of destruction" has slowly taken away all control of her body.

“This disease wants to still kill and destroy, and you got to fight like you've never fought before,” Anker said.

Anker is fighting Lou Gehrig’s disease, the degenerative muscle disease called Amyotrophic Lateral Sclerosis. The ALS Association estimates as many as 30,000 Americans have the incurable disease.

“You have no way to escape. That's how you feel in this body. And you have nowhere to go but to surrender,” said Anker. “Surrendering to the people who love you and who want to take care of you. It's so hard at times."

Allena is a devoted wife and mother of two, and credits the support form her family as what keeps her from falling into what she calls a dark pit of depression.

“Every day is brand new with her,” Anker’s husband Drew said. “And all we got is today. Don't let anything that's behind you make you stumble."

Even with travel becoming quite the burden, she still makes it down to Skid Row in Los Angeles to share her message - what she calls her container of hope. Back at home in Bend you can find her at the local homeless shelter, or at the county jail with her head bowed in prayer.

"Everybody else is your hands, and your feet. Your eyes, your fingers," said Anker. “Your heart just takes over.”